Aims

  • To identify the deficits in HD that are associated with impaired fitness to drive and to predict such impairments.
  • To identify the tests that best quantify these deficits.
  • To come up with recommendations to help physicians to decide when they should refer HD patients to national driving license agencies.
  • To come up with recommendations that can be used by national driving license agencies to improve fitness to drive assessments in HD.

The Taskforce is a joint effort between:

  • Leiden University Medical Centre, The Netherlands
  • University Medical Center Groningen, The Netherlands
  • George Huntington Institute Münster, Germany
  • University Hospital Leuven, Belgium
  • Ulm University, Germany

Projects

  • Leiden University Medical Centre: Differences in driving ability between premanifest HD, manifest HD, and healthy individuals. Which cognitive, motor or psychiatric symptoms contribute to driving ability in HD?
  • University Medical Center Groningen: The effect of risk taking behaviour and self-awareness in HD patients on fitness to drive.
  • George Huntington Institute Münster: Integrate all results and combine this with the ENROLL-HD data. Can we predict fitness to drive from data collected in ENROLL-HD?
  • All sites: A questionnaire survey among patients and spouses on driving behaviour.

Contact

Contacts:

University Medical Center Groningen
Groningen, the Netherlands

George Huntington Institute Münster
Münster, Germany

University Hospital Leuven
Leuven, Belgium

Ulm University
Ulm, Germany

Associated EHDN Language Area Coordinator:
Annika Zeller, EHDN Lanco,
Germany