Clinical guidelines developed by the EHDN Working Groups

The EHDN has supported the development of physiotherapy guidelines from 2009 and the latest physiotherapy practice guidelines were published in January 2020. The two key documents related to physiotherapy practice are the 2013 Physiotherapy Clinical Guidelines, and the clinical recommendations to guide physical therapy practice published in 2020.
The 2013 guidelines provide guidance on the management of seven treatment classification e.g. exercise capacity, mobility balance and falls and end stage care. This document includes some detail on suitable outcome measures and management plans. These guidelines are published in a number of languages see below.

Documents:

  • Summary of Physiotherapy Guidelines:
Language Summary of 2020 Physiotherapy Guidelines for HD families Summary of 2020 Physiotherapy Guidelines for healthcare professionals
Czech Doporucené postupy pro fyzioterapii u Huntingtonovy nemoci: prehled pro rodiny Doporucené postupy pro fyzioterapii u Huntingtonovy nemoci: prehled pro zdravotníky
English HD Physiotherapy 2020 guidelines: Summary for HD families HD Physiotherapy 2020 guidelines: Summary for healthcare professionals
French Directives de kinésithérapie pour la maladie de Huntington Recommandations cliniques pour la pratique de la kinésithérapie dans la maladie de Huntington
German Physiotherapie Richtlinien für die Huntington Krankheit Klinische Empfehlungen als Richtlinie für Physiotherapie bei der Huntington Krankheit
Hebrew קווים מנחים לטיפולבפיזיותרפיה לאנשים עםמחלת הנטינגטון קווים מנחיםלפיזיותרפיסטים המטפלים באנשים עםמחלתהנטינגטון
Italian Linee guida per la fisioterapia nella MH: Riassunto per le famiglie con MH Linee guida per la fisioterapia nella MH: Riassunto per gli operatori sanitari
Polish Podsumowanie wytycznych dotyczących fizjoterapii w chorobie Huntingtona: Podsumowanie dla Rodzin Podsumowanie wytycznych dotyczących fizjoterapii w chorobie Huntingtona: Podsumowanie dla pracowników ochrony zdrowia
Portuguese Diretriz de Fisioterapia para HD 2020 resumo para famílias com DH Diretriz de Fisioterapia para DH 2020 resumo para profissionais da area de saúde
Spanish Guías 2020 de Terapia Física para Enfermedad de Huntington: Resumen para familiares Guías 2020 de Terapia Física para Enfermedad de Huntington: Resumen para profesionales de la salud

 

  • Physiotherapy Clinical Guidelines:
2013 Physiotherapy Clinical Guidelines:

Danish
KLINISKE RETNINGSLINJER FOR FYSIOTERAPI VED HUNTINGTONS SYGDOM

Dutch
RICHTLIJN KLINISCHE FYSIOTHERAPIE

English
PHYSIOTHERAPY CLINICAL GUIDELINES

Finnish
FYSIOTERAPIASUOSITUS HUNTINGTONIN TAUDIN HOITOON

French
POUR KINÉSITHÉRAPEUTES ERGOTHÉRAPEUTES

German
RICHTLINIEN FÜR DIE KLINISCHE PHYSIOTHERAPIE

Italian
LINEE GUIDA CLINICHE DI FISIOTERAPIA PER LA MALATTIA DI HUNTINGTON

Polish
WYTYCZNE DLA FIZJOTERAPII W CHOROBIE HUNTINGTONA

 

  • Articles from Neurodegenerative Disease Management:
Open access guidelines published in 2012 in the journal
Neurodegenerative Disease Management“: