HD PATIENTS & FAMILIES

Researchers, clinicians, and HD families work together within the EHDN to fulfil our mission, and anyone who has an interest in HD may become an EHDN member. You can also find out more about HD, clinical sites and research participation opportunities near you, as well as ways to get in touch with further resources for you and your family.

CLINICAL TRIAL SPONSORS

The EHDN is keen to work with sponsors of HD clinical trials – from the pharmaceutical industry or academia – to help facilitate the conduct of their clinical trials. We offer a range of services to expedite clinical trial set-up and recruitment as well as provide scientific input via endorsement of protocols, feasibility assessment, operational support, recruitment support and clinical rater training.




Research Projects

The EHDN supports HD research and clinical development at all stages, from basic and applied science through to the development of new treatment strategies, clinical assessment tools, and best clinical practice guidelines, to site feasibility assessment, site selection and patient recruitment for clinical trials.

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Data Analytics from Enroll-HD. A Global Clinical Research Platform for HD

Participants at the Leiden Site of the REGISTRY Study: A Demographic Approach

Identification of Genetic Factors that Modify Clinical Onset of Huntington’s Disease

A SNP in the HTT promoter alters NF-kB binding and is a bidirectional genetic modifier of Huntington disease