HD PATIENTS & FAMILIES
Researchers, clinicians, and HD families work together within the EHDN to fulfil our mission, and anyone who has an interest in HD may become an EHDN member. You can also find out more about HD, clinical sites and research participation opportunities near you, as well as ways to get in touch with further resources for you and your family.
HD CLINICIANS & RESEARCHERS
The EHDN advances research by providing access to large longitudinal clinical datasets and biosamples from the Enroll-HD and Registry studies as well as through the working groups, fellowship exchange programmes, seed funds, grant manager support, scientific input and operational support for clinical trials, development of clinical assessment tools and guidelines for best practice in HD care, and arranging biennial scientific plenary meetings
CLINICAL TRIAL SPONSORS
The EHDN is keen to work with sponsors of HD clinical trials – from the pharmaceutical industry or academia – to help facilitate the conduct of their clinical trials. We offer a range of services to expedite clinical trial set-up and recruitment as well as provide scientific input via endorsement of protocols, feasibility assessment, operational support, recruitment support and clinical rater training.
The EHDN supports HD research and clinical development at all stages, from basic and applied science through to the development of new treatment strategies, clinical assessment tools, and best clinical practice guidelines, to site feasibility assessment, site selection and patient recruitment for clinical trials.See all research
Identification of Genetic Factors that Modify Clinical Onset of Huntington’s Disease