We work towards our mission by:

  • Identifying the clinical needs of young adults who are at risk, HD gene carriers or non-gene carriers
  • Facilitating participation in ongoing clinical studies
  • Increasing the spread of information to young adults in the HD community
  • Facilitating the establishment of young adult support networks for young adults in the HD community


Contact Information

Lead Facilitator:
Scottish Huntington’s Association,
Scotland, UK


Co-lead Facilitators:
Executive Director HDYO


Saül Martinez Horta, Neuropsychologist
Sant Pau Hospital,
Barcelona, Spain


German Huntington’s Association,


Associated EHDN Language Area Coordinator:
Andrea Horta, EHDN Lanco,