Data-Mining Projects

Data and/or biosamples in the Enroll-HD and Registry studies are available to investigators. Any qualified researcher can apply for data and biosamples from the Enroll-HD study – details about the application procedure is explained in detail here.  Any member of the EHDN may apply to the EHDN Scientific and Bioethics Advisory Committee (SBAC) to use clinical data and/or biosamples collected in the Registry study. Please remember to link to the acknowledgement list of Registry contributors when publishing results using Registry data. This list includes all Registry contributors during the entire duration of the study. Click here for more information.